The following readings are a starting set of papers that fit the topics of this class. Students can choose other papers for the ones where they want to lead the discussion, but they should be sent to the instructor ahead of time for approval.
Brennan PF, Safran C. Empowered consumers. In: Lewis D, Eysenbach G, Kukafka R, Stavri PZ, Jimison H, eds. Consumer health informatics: Informing consumers and improving health care. Health Informatics Series. Springer; 2005.
Pratt W, Unruh K, Civan A, et al. Personal health information management. Commun ACM 2006;49(1):51- 55.
Klasnja, P., Civan-Hartzler, A., Unruh, K.T., & Pratt, W. (2010 - In Press). Blowing in the Wind: Unanchored Patient Information Work During Cancer Care. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10). April 2010, Atlanta, GA.
Grimes, A., Landry, B., and R.E. Grinter (2010) “Characteristics of Shared Health Reflections in a Local Community” accepted to ACM Conference on Computer Supported Cooperative Work (CSCW 2010). Savannah, GA. February 6-10.
Hayes, G.R., Abowd, G.D., Davis, J., Blount, M., Ebling, M., and Mynatt, E.D. “Opportunities for Pervasive Computing in Chronic Cancer Care” Proceedings of Pervasive 2008. Sydney, Australia. 2008.
Civan-Hartzler, A., McDonald, D., Powell, C., Skeels, M., Mukai, M., & Pratt, W. (2010 - In Press) Bringing the Field into Focus: User-Centered Design of a Patient Expertise Locator. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10). April 2010, Atlanta, GA.
Moen A, Brennan PF. Health@home: The work of health information management in the household (HIMH): Implications for consumer health informatics (CHI) innovations. J Am Med Inform Assoc 2005;12(6):648-56.
Unruh, K.T., Skeels, M., Civan-Hartzler, A., & Pratt, W. (2010 - In Press). Transforming Clinic Environments into Information Workspaces for Patients. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10). April 2010, Atlanta, GA.
Zayas-Caban T. Assessing the distributed nature of home health information management to inform human factors design. In: Proceedings of the Human Factors and Ergonomics Society 49th Annual Meeting, Orlando, FL. Santa Monica, CA: Human Factors and Ergonomics Society;49:1747-51; 2005.
Mandl K, Simons W, Crawford W, et al. Indivo: A personally controlled health record for health information exchange and communication. BMC Med Inform Decis Mak; 2007 Sep 12;7:25.
Tang PC, Ash JS, Bates DW, et al. Personal health records: Definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 2006;13(2):121-6.
Frost JH, Massagli MP. Social uses of PHI within patientslikeme, an online patient community: What can happen when patients have access to one another’s data. J Med Internet Res 2008;10(3):E15.
Kim, S., J.A. Kientz, S.N. Patel, and G.D. Abowd. Are You Sleeping? Sharing Portrayed Sleeping Status within a Social Network. In the Proceedings of the 21st Conference on Computer Supported Cooperative Work (CSCW '08). San Diego, California, USA. 2008.
Skeels, M., Unruh, K.T., Powell, C., & Pratt, W. (2010 - In Press). Catalyzing Social Support for Breast Cancer Patients. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '10). April 2010, Atlanta, GA.
Weiss JB, Lorenzi NM. Interface Design for Patient-Caregiver Integrated Network. AMIA Annu Symp Proc. 2006; 2006: 1141.