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Main page
Agenda
Participant Profiles
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 Jina Huh is a postdoctoral fellow at the University of Washington Division of Biomedical and Health Informatics (BHI). She is interested in weaving together patient expertise, public health data, and clinical expertise to make it available to online patient communities. Jina has a PhD from the School of Information University of Michigan and her thesis work has been presented at a number of universities.
jinahuh@uw.edu
http://jinah.people.si.umich.edu
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 Andrea Hartzler is a research scientist at the University of Washington (UW). She received her PhD in Biomedical Informatics from BHI. Her research focuses on understanding and helping patients to share their personal health expertise with one another. Her recent work matches patients with peer mentors in online health communities.
andreah@uw.edu
http://staff.washington.edu/andreah |
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 Sean Munson is a PhD candidate at the University of Michigan's School of Information. He studies social software to support behavior change and maintenance, particularly for health and wellness. His recent work focused on ways to leverage existing social network sites to help people achieve their wellness goals.
samunson@umich.edu
http://www.smunson.com |
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 Nick Anderson is an Assistant Professor in BHI, an Adjunct Assistant Professor in the Department of Bioethics and Humanities (BH), and co-leads the Biomedical Informatics Core of the Institute of Translational Health Sciences at the UW. Nick focuses on the processes, technologies and ethical impact of sharing anonymized large-scale clinical data to advance translational science.
nicka@uw.edu
http://faculty.washington.edu/nicka/
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Kelly Edwards is an Associate Professor in BH and the Institute for Public Health Genetics at UW. Research activities include serving as Director of the Ethics and Outreach Core for the Center for Ecogenetics and Environmental Health and also as Co-Director of the Regulatory Support and Bioethics Core for the Institute for Translational Health Sciences (CTSA), and lead investigator with the Center for Genomics and Healthcare Equality.
edwards@uw.edu
http://depts.washington.edu/bhdept/
facres/kfe_bio.html |
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 John L. Gore is a urologic oncologist and health services researcher. Following his urology training at UCLA, he completed his health services research training as a Robert Wood Johnson Clinical Scholar at UCLA. John is currently an Assistant Professor in Urology at the UW and is working to enable patients with prostate cancer to have access to their quality of life results for use in their clinical care.
jlgore@uw.edu
http://depts.washington.edu/
uroweb/physician-10-Gore.php |
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 Jim O'Leary works on the Twitter security team, with previous experience as a security engineer for nearly every product that Microsoft's Health Solutions Group has ever shipped (primarily focused on HealthVault). Now protecting and operating large-scale real-time systems, he still gets his health-tech fix from his pediatrician fiancé. Jim holds BS degrees in Computer Science and Psychology from Rensselaer Polytechnic Institute, and an MS in CS from the University of Washington.
jimole@gmail.com |
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 Andrea Parker is a postdoctoral researcher at Georgia Tech, where she designs collaborative software tools to help reduce childhood obesity. She holds a PhD in Human-Centered Computing from Georgia Tech. In her dissertation work, she designed community-based tools to support healthy eating in low-income neighborhoods. Her research has been funded by the National Science Foundation and Microsoft Research and she has been an invited speaker at the National Institute of Health and various universities.
agrimes@cc.gatech.edu
http://www.cc.gatech.edu/~agrimes |
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 Derek Streat is an accomplished technology entrepreneur. He is the co-founder and CEO of Medify, Inc., a next-generation consumer health company that aims to help people manage important health situations, discover what really works for people like them, and then to get help from those they trust most. Previously, he served as VP of New Ventures at Unitus, co-founder and CEO of Adready, a member of the initial executive team at Classmates Online, and VP of Business Development and General Manager of Classmates' advertising and media business.
dstreat@mymedify.com
https://www.medify.com/about/team#advisory
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 Meliha Yetisgen-Yildiz is an Assistant Professor in BHI. She received her PhD from UW with a thesis on biomedical text mining. Before joining to BHI, she worked as a post-doctoral researcher at UW and as a text mining researcher in industry. Her current research interests include clinical natural language processing, biomedical text mining, and information extraction. She leads the UW-BioNLP group.
melihay@uw.edu
http://faculty.washington.edu/melihay/ |
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 Wanda Pratt is an Associate Professor in both the Information School and BHI at the University of Washington. Her research looks at information overload in a variety of health contexts and develops new types of technology to address those problems. She is on the editorial board for the Journal of Biomedical Informatics and recently served on the standing grant-review committee for the National Library of Medicine.
wpratt@uw.edu
http://faculty.washington.edu/wpratt/ |
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 Mark Ackerman is a Professor at the University of Michigan in Information and in Computer Science and Engineering. His research is centered around organizational memory, online communities, and social computing. His recent efforts into health care include examining the social issues of information use and studying community-based help mechanisms. He is a member of the CHI Academy.
ackerm@umich.edu
http://www.eecs.umich.edu/~ackerm/ |
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 David McDonald is a faculty at the Information School at University of Washington. His current research is focused on technology and media use in the home and collaborative issues in large-scale peer production systems. He has published research on collaborative authoring, recommendation systems, organizational memory, and public use of large screen displays.
dwmc@uw.edu
http://projects.ischool.washington.edu/mcdonald/ |
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Main page > Agenda
February 11, 2012 9:00 am ~ 5:30 pm
Hyatt Regency Bellevue, Seattle, WA
Room: Juniper
Contact Infomation:
Jina Huh: 734.645.3664
Andrea Hartzler: 206.992.2210
Small group distributions:
| Group 1. Methods for processing narrative versus numeric data |
Group 2. Decpicting a diveresity of opinions and experiences embedded within patient-generated information |
Group 3. Working with "lay" concepts and language and their alignment with complex medical issues |
Group 4. Being mindful with privacy-enhancing methods for data handling |
| Meliha Yetisgen-Yildiz |
Kelly Edwards |
John Gore |
Jim O'Leary |
| David McDonald |
Andrea Hartzler |
Jina Huh |
Sean Munson |
| Albert Park |
Marcela Musgrove |
Wanda Pratt |
Nick Anderson |
| Joe McCarthy |
Minsu Park |
Erika Poole |
Hrvoje Belani |
| Katie Derthick |
Debra Revere |
Jill Nussbaum |
Carolyn Pang |
| Rannie Teodoro |
Shaun Phillips |
Katie McCurdy |
Tae-Hun Cho |
| Reid Priedhorsky |
Jon Poelman |
Matt Willis |
Ashlea Wilmott |
| Jonathan Sillito |
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Jay Vaglio |
Wendy Kellogg |
Schedule:
| When |
What to do |
Who |
| 9:00 ~ 9:05 |
Get settled |
All |
| 9:05 ~ 9:15 |
Introduction of the workshop
1. Definition of patient-generated information on the Web
2. Workshop format
3. Q&A |
Jina / Andrea |
| 9:15 ~ 9:45 |
Short elevator introduction of everyone:
Affiliation (who you are), area of work, one thing you want to walk away from the workshop with |
All |
| 9:45 ~ 10:15 |
Paul Wick's Presentation -- 15 ~ 20 minute presentation, 10 minutes discussion and Q&A |
Paul Wicks |
| 10:15 ~ 10:30 |
1. Re-introduce topics for each group
2. Introduce the task -- give an example
3. Break out into small groups |
Jina / Andrea |
| 10:30 ~ 11:00 |
Break |
All |
| 11:00 ~ 12:00 |
Small group session 1: Defining the problem space
Task: Let small groups define a problem space that they are going to address.
Outcomes: A scenario describing the problem that the group wants to address issues on the design and challenges
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Small groups |
| 12:00 ~ 12:30 |
Each group presents for 5 minutes the scenario and the issues |
All: together |
| 12:30 ~ 2:00 |
Lunch (restaurant list) |
All |
| 2:00 ~ 3:00 |
Small group session 2: Design solutions
Introduction for the afternoon task
Task: Let small groups work through coming up with design solutions for the problem. The design solution can be half-baked ideas, or extremely ideal as if it is made from a magic wand. The important thing is that, during this process, the groups focus on addressing challenges in making the design solution to come true, specifically around their groups' topic.
Outcomes: (1) A concrete design artifact--A use case scenario that illustrates the use of the artifact; (2) Specific challenges around the group's topic |
Jina / Andrea
Small groups |
| 3:00 ~ 3:30 |
Each group prepares a presentation in the forms of a speech, a sketch, or slides depending on the groups' preferences |
Small groups |
| 3:30 ~ 4:00 |
Break |
All |
| 4:00 ~ 5:00 |
All-group presentations and Q&A (15 minutes total) |
All |
| 5:00 ~ 5:30 |
Recap and next steps. What do we want to do with the outcome of the workshop?
- What did we learn? What is possible, and what is difficult?
- Discuss potential collaborations together
- Call for interested participants for writing up a workshop report |
All |
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