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Agenda
Participant Profiles

 
Organizers  

Jina Huh is a postdoctoral fellow at the University of Washington Division of Biomedical and Health Informatics (BHI). She is interested in weaving together patient expertise, public health data, and clinical expertise to make it available to online patient communities. Jina has a PhD from the School of Information University of Michigan and her thesis work has been presented at a number of universities.
jinahuh@uw.edu
http://jinah.people.si.umich.edu

  
   
Andrea Hartzler is a research scientist at the University of Washington (UW). She received her PhD in Biomedical Informatics from BHI. Her research focuses on understanding and helping patients to share their personal health expertise with one another. Her recent work matches patients with peer mentors in online health communities.
andreah@uw.edu
http://staff.washington.edu/andreah		  
   
Sean Munson is a PhD candidate at the University of Michigan's School of Information. He studies social software to support behavior change and maintenance, particularly for health and wellness. His recent work focused on ways to leverage existing social network sites to help people achieve their wellness goals.
samunson@umich.edu
http://www.smunson.com		  
   

Nick Anderson is an Assistant Professor in BHI, an Adjunct Assistant Professor in the Department of Bioethics and Humanities (BH), and co-leads the Biomedical Informatics Core of the Institute of Translational Health Sciences at the UW. Nick focuses on the processes, technologies and ethical impact of sharing anonymized large-scale clinical data to advance translational science.
nicka@uw.edu
http://faculty.washington.edu/nicka/

  
   

Kelly Edwards is an Associate Professor in BH and the Institute for Public Health Genetics at UW. Research activities include serving as Director of the Ethics and Outreach Core for the Center for Ecogenetics and Environmental Health and also as Co-Director of the Regulatory Support and Bioethics Core for the Institute for Translational Health Sciences (CTSA), and lead investigator with the Center for Genomics and Healthcare Equality.
edwards@uw.edu
http://depts.washington.edu/bhdept/
facres/kfe_bio.html

  
   
John L. Gore is a urologic oncologist and health services researcher. Following his urology training at UCLA, he completed his health services research training as a Robert Wood Johnson Clinical Scholar at UCLA. John is currently an Assistant Professor in Urology at the UW and is working to enable patients with prostate cancer to have access to their quality of life results for use in their clinical care.
jlgore@uw.edu
http://depts.washington.edu/
uroweb/physician-10-Gore.php		  
   
Jim O'Leary works on the Twitter security team, with previous experience as a security engineer for nearly every product that Microsoft's Health Solutions Group has ever shipped (primarily focused on HealthVault). Now protecting and operating large-scale real-time systems, he still gets his health-tech fix from his pediatrician fiancé. Jim holds BS degrees in Computer Science and Psychology from Rensselaer Polytechnic Institute, and an MS in CS from the University of Washington.
jimole@gmail.com		  
   
Andrea Parker is a postdoctoral researcher at Georgia Tech, where she designs collaborative software tools to help reduce childhood obesity. She holds a PhD in Human-Centered Computing from Georgia Tech. In her dissertation work, she designed community-based tools to support healthy eating in low-income neighborhoods. Her research has been funded by the National Science Foundation and Microsoft Research and she has been an invited speaker at the National Institute of Health and various universities.
agrimes@cc.gatech.edu
http://www.cc.gatech.edu/~agrimes		  
   
Derek Streat is an accomplished technology entrepreneur. He is the co-founder and CEO of Medify, Inc., a next-generation consumer health company that aims to help people manage important health situations, discover what really works for people like them, and then to get help from those they trust most. Previously, he served as VP of New Ventures at Unitus, co-founder and CEO of Adready, a member of the initial executive team at Classmates Online, and VP of Business Development and General Manager of Classmates' advertising and media business.
dstreat@mymedify.com
https://www.medify.com/about/team#advisory 		 
   
Meliha Yetisgen-Yildiz is an Assistant Professor in BHI. She received her PhD from UW with a thesis on biomedical text mining. Before joining to BHI, she worked as a post-doctoral researcher at UW and as a text mining researcher in industry. Her current research interests include clinical natural language processing, biomedical text mining, and information extraction. She leads the UW-BioNLP group.
melihay@uw.edu
http://faculty.washington.edu/melihay/		  
   
Wanda Pratt is an Associate Professor in both the Information School and BHI at the University of Washington. Her research looks at information overload in a variety of health contexts and develops new types of technology to address those problems. She is on the editorial board for the Journal of Biomedical Informatics and recently served on the standing grant-review committee for the National Library of Medicine.
wpratt@uw.edu
http://faculty.washington.edu/wpratt/		  
   
Mark Ackerman is a Professor at the University of Michigan in Information and in Computer Science and Engineering. His research is centered around organizational memory, online communities, and social computing. His recent efforts into health care include examining the social issues of information use and studying community-based help mechanisms. He is a member of the CHI Academy.
ackerm@umich.edu
http://www.eecs.umich.edu/~ackerm/		  
   
David McDonald is a faculty at the Information School at University of Washington. His current research is focused on technology and media use in the home and collaborative issues in large-scale peer production systems. He has published research on collaborative authoring, recommendation systems, organizational memory, and public use of large screen displays.
dwmc@uw.edu
http://projects.ischool.washington.edu/mcdonald/		  


Welcome to our workshop, "Brainstorming Design for Health: Helping Patients Utilize Patient-Generated Information on the Web." This workshop is part of the ACM conference on Computer Supported Cooperative Work:



Call for papers:
We invite researchers, practitioners, designers, ethnographers, engineers, and programmers who are interested in using patient-generated information on the Web, such as forum posts, blogs, tweets, or facebook status to help with individuals' personal health management practices.

The goal of this workshop is to create a collaborative environment for multidisciplinary interaction around grand challenges for utilizing patient-generated information on the web and generation of tangible design solutions. We encourage participants from varying backgrounds--computer science, design, social science, and many more--to apply. Examples of design challenges we will cover Examples of design challenges the workshop with cover:

  • Scalable methods for managing increasingly large data sets: Patients’ participation is increasing on the Web as online health communities and other health-related tools become available to the public. As a result, we have large quantities of patient-generated information that describes patients’ health and experiences and that can be leveraged for design and research opportunities. What techniques are most suitable for processing data at this scale to accommodate this growing source of data?
  • Methods for processing narrative versus numeric data: Although quantifiable data is the focus of many current efforts to utilize patient-generated information, it is only part of what patients are sharing online. Much of patients’ experience and expertise is contained within the narrative contributions of textual posts. How can we use both numeric and narrative data to supplement our contextual understanding of patients’ experience?
  • Depicting a diversity of opinions and experiences embedded within patient-generated information: Health management often brings out individualized problems and a range of potential solutions. However, current systems often highlight popular, active, or recent discussion topics, inevitably hiding issues that are less common. How can we help to increase diversity in the shared data?
  • Working with ‘lay’ concepts and language and their alignment with complex medical issues: Patients share personal interpretations about medical concepts, treatment options, and doctors’ opinions. How can we help patients appropriately communicate what they learn from the online space with others, such as health-care providers? Similarly, how can user-generated data be combined with “expert opinions” from health professionals?
  • Being mindful with privacy-enhancing methods for data handling: As patients share their data on the Web, they may not realize how their data could be used for other purposes. What mechanisms can help patients understand issues of secondary data use and support their decisions of what, where, when, and how to share? What are the ethical and legal issues for harvesting, storing, and, reusing patient-generated information?

For more details on the workshop, please refer to our proposal.

The majority of the workshop time will be spent in brainstorming in small groups. Accordingly, we do not ask interested participants to submit a research paper. Rather, we ask participants to submit a one-page summary that explains:

  • Biography: Your background, past and current project as well as how you foresee your future work to be in relation to the theme of the workshop.
  • Interests to the workshop: What do you think you can contribute to the workshop? What would you like to accomplish from the workshop?

Please submit the material to the following email by November 25th: DesignForHealthCSCW2012@gmail.com
Once you are accepted, the submission material will be shared on the website for other participants to see. You can request us to not have it publicly available on this website.

Important Dates:
Submission due: November 25th, 2011
Notification of acceptance: December 9th, 2011
Date of workshop: February 11th or 12th 2012. Hyatt Regency Bellevue, Seattle, Washington

Here is the information on the workshop attendance fee.

For more details on the CSCW 2012 conference, please refer to the CSCW 2012 workshops page. Feel free to email DesignForHealthCSCW2012@gmail.com for more questions or email Jina Huh at jinahuh@uw.edu.